Experience

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  Trisomy 18 Foundation

  • United States
  • Philanthropic Fundraising Services
  • 1 - 100 Employee

  • Board Member

    • 2021 - Present

  • Founding Executive Director

    • Mar 2003 - Dec 2021

    Founder and Executive Director (Emeritus) of Trisomy 18 Foundation, a US-based patient advocacy and disease research advocacy association focused on medical research to improve patient outcomes for infants and their families impacted by the chromosomal disorder, Trisomy 18 and related conditions. Trisomy 18 affects 1 in 2500 pregnancies, resulting in high incidences of stillbirths and early infant loss in the first year of life. The Foundation's mission is focused on strategic research investments toward making Trisomy 18 a preventable and treatable condition and ensuring that all parents have access to knowledgeable and compassionate care that respects the humanity and potential of a child diagnosed with Trisomy 18 at any stage of the life cycle.

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  US Navy

  • Bahrain

  • Fifth Fleet, U.S. Navy Family Ombudsmen

    • Jan 2000 - Jul 2001
    • Bahrain

    Served as volunteer Navy Family Ombudsman within the 5th Fleet Command in Bahrain, focused on developing maternal/child and prenatal and postnatal care programs for command families managing pregancies and deliveries, coordinating continuity of care between the national Bahraini Health Care System and the Tricare Military Health Care System.

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  University of Bahrain

  • Adjunct Professor

    • Sep 2000 - May 2001

    Led classes in American History and Business Writing in English to Arabic-speaking college students at the University of Bahrain in the Kingdom of Bahrain.

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  Marigold Graphics

  • Austin, Texas

  • President, Small Business Owner

    • Jan 1993 - Dec 1999
    • Austin, Texas

    Licensed, developed and marketed a product line of gift items for the wholesale National Park and Presidential Library Gift Store market that featured licensed artists designs of botanically accurate wildflower art on renewable and soy-based paper gift items. Major Clients included LBJ Presidential Library, National Botanical Garden, George Bush Sr. Presidential Library, and Lady Bird Johnson National Wildflower Research Center, along with national franchises like Wild Birds Unlimited.

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  University of Texas at Austin

  • History Department

  • University American History Undergraduate Instructor

    • Sep 1987 - Dec 1992
    • History Department

    Undergraduate Instructor in American History courses, while studying for the PhD degree in American History. Completed all degree course work. Specialized in the intellectual and cultural history of the Antebellum and Reconstruction period, including the rise of public universities and professional science in the United States.

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  Planergy

  • Austin, Texas

  • Project Manager

    • Sep 1985 - Aug 1987
    • Austin, Texas

    Electric and Gas Utility Consulting, Project Manager of National Client Engagements with Top 10 Major Utility Companies in the United States. Specialist in design and deployment and evaluation of Conservation/Cogeneration Programs as part of Demand-Side planning initiatives in response to new National Energy Policy Guidelines.

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  Reliant Energy

  • Houston, Texas

  • Strategic Planning Specialist

    • Sep 1982 - Aug 1985
    • Houston, Texas

    (Formerly Houston Lighting and Power)Worked as part of Regulatory Team implementing new energy supply pricing models for Customer Cogenerated Power from Major Industrial clients like Dow Chemical, Diamond Shamrock, and others.