Experience

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  Freelance

  • United States

  • Patient Advocate - Retired

    • Mar 2023 - Present
    • United States

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  BioCryst Pharmaceuticals, Inc.

  • Durham, North Carolina, United States

  • Executive Director, Global Patient Advocacy

    • Feb 2021 - Mar 2023
    • Durham, North Carolina, United States

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  Horizon

  • Director, Global Patient Advocacy

    • Feb 2015 - Feb 2021

    • Lead the development, management and implementation of a global advocacy strategy for Horizon Therapeutics and its products, positioning and differentiating the company as a committed leader in rare disease. • Planned and oversight of stakeholder engagement strategy including stakeholder mapping, relationship management, initiative identification and implementation.• Built and maintained compliant relationships with key stakeholders including global advocacy leaders, decision makers, opponents and allies.• Supported regulatory drug development programs, successful acceleration of clinical trial enrollment through leveraging patient advocacy organization communications channels• Led advocacy efforts, strategic plan development and provided critical insights for a successful launch into a niave disease state community • Led and development of patient advisory council that guided cross-functional activities during a new compound launch • Managed and led a team of two advocacy professionals who consistently exceeded their business objectives and provided critical support to internal teams.• Development and oversight of charitable and department budget • Acted as the external face of the organization with patient community and media

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  Grifols

  • Manager, Patient Relations & Outreach

    • Nov 2007 - Feb 2015

    • Identify, prioritize and create engagement plans for national advocacy and professional group partners in the U.S. in collaboration with key internal constituents.• Partner with Government Affairs to develop strategies and positioning to impact legislation, regulations and/or administrative actions on healthcare-related issues important to the company, the biopharmaceutical industry and patients.• Assist in the creation and distribution of consistent patient-aimed messages and materials for key stakeholders.• Train and counsel internal stakeholders to understand expertise and mutual areas of interest between the company and advocacy groups to optimally serve our patient communities.• Serve as patient advocacy relations’ lead on the formal and informal internal cross-functional teams that are created to develop strategies and tactics for product-related issues and activities.• Monitor competitive landscape for corporate activities in the disease areas where we operate.• Design, coordinate and manage corporate patient open houses and donation center tours and educational programs.

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  Immune Deficiency Foundation

  • Retreat Director

    • Jun 1997 - Jun 2009

    Designed and implemented a program that provided educational opportunities for those dealing with a primary immunodeficiency. Expanded program from one site to a national program held in four different geographical regions. Handled all aspects of event planning including and not limited to site selection, program content, publication development, on-site management and correspondence.Secured, and managed event budget and funding.Recruited physician speakers.Recruited and managed volunteer staff.

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  ImmuNet

  • General Manager

    • Nov 2005 - Nov 2007

    • Strategically steered forward-thinking design, planning, and implementation of a results-driven health management program for all ages of patients with primary immunodeficiency disease.

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  United Way of Central Florida

  • Lakeland, Florida Area

  • Campaign Director

    • 1990 - 1992
    • Lakeland, Florida Area

    • Primary manager and staff support for United Way annual Workplace Campaign.• Effectively strategized, planned and implemented the annual workplace campaign and year- round employee engagement initiatives raising maximum dollars to the United Way Community Fund. • Participated in the development of the campaign structure through which community-wide support for fundraising is achieved.• Ensure the success of the annual United Way workplace campaign by providing year-round leadership and support to the Campaign Chair.• Recruited, motivated, trained, and managed key workplace campaign volunteers.• Managed all staff and volunteers with campaign assignments in analyzing, organizing and executing the annual campaign effort.• Developed and executes yearly work plans for assigned campaign responsibilities.• Established performance measures, monitors results and produce evidence that demonstrates the effectiveness of the annual Workplace Campaign.• Maintained awareness of advancements in philanthropy and fund development, as well as the general fields of management and the not-for-profit sector.• Informed management and board volunteers of current workplace trends, issues, problems and activities in order to facilitate policy making. Recommends policy positions concerning fund development.• Cultivated support among community stakeholders for the purpose of acquiring new business and ensuring donor retention.• Served as the liaison between Workplace Campaign and Marketing/Communications in the development of campaign branding/marketing/advertising materials.• Participated in ongoing, year-round, cultivation activities with volunteers and donors.• Managed and published a countywide Needs Assessment that was used for strategic planning and fund distribution. • Served as backup to other Campaign Managers as required.

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  Palmview Hospital

  • Lakeland, Florida Area

  • Director Of Public Relations/Admissions Director

    • 1986 - 1990
    • Lakeland, Florida Area

    • Played a vital role in directing public relations, marketing and community relations for a private psychiatric hospital, including leading a solutions-focused team of 5 in meeting all facets of admission goals and market penetration.• Actively involved in Physician Relations.• Applied solid communication skills toward actively communicating among patients and physicians• Met and exceeded all business goals for both the strategic public relations plan and admission business goals