EveryLife Foundation for Rare Diseases
Public Policy OfficesView the employees at
EveryLife Foundation for Rare Diseases-
Alyssa Terwall Director of Patient Programs and Events
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Rising Star
Margo Knight Metzger Senior Director of Marketing & Communications-
Raleigh, North Carolina, United States
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Top 5%
Brenda Colmenares Associate Director of Communications-
Arlington, Virginia, United States
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Rising Star
Katelyn Laws Rare Disease Legislative Advocates (RDLA) Program Manager at EveryLife Foundation for Rare Diseases-
Rising Star
Annie Kennedy Rare Disease Policy, Advocacy, Patient Engagement-
Washington, District of Columbia, United States
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Top 10%
Overview
We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.
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