EveryLife Foundation for Rare Diseases
Public Policy Offices
View the employees at
EveryLife Foundation for Rare Diseases-
View DetailsCourtney Felle YARR Program Manager at EveryLife Foundation for Rare Diseases
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View DetailsEmma Lee Communications Intern - Everylife Foundation | Incoming Anthropology + Sociology Masters Student @ IHEID-
Los Angeles Metropolitan Area
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View DetailsJack Meloro Policy Programs Manager at EveryLife Foundation for Rare Diseases-
View DetailsBaillie McGowan, MPH Health Policy| Public Health| Passionate about analyzing policy to create effective change.-
Virginia Beach, Virginia, United States
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View DetailsSwapna Kakani RDLA State Advocacy Fellow, TED Speaker, Healthcare Advocate, Director of Alabama Rare-
Birmingham, Alabama
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Overview
We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.
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