Experience

EveryLife Foundation for Rare Diseases

• United States
• Public Policy Offices
• 1 - 100 Employee

• Rare Disease Legislative Advocates (RDLA) Program Manager

  • Jan 2022 - Present

• Rare Disease Legislative Advocates (RDLA) Program Coordinator

  • May 2020 - Dec 2021

  The EveryLife Foundation is dedicated to accelerating rare disease therapies, and ensuring patients have access to treatment and diagnostic opportunities through science-driven public policy. Rare Disease Legislative Advocates (RDLA) is a program of the EveryLife Foundation designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to empowering the rare disease patient community to drive impactful, science-driven legislation and policy that advances the development of treatments, diagnostic opportunities, and access. Show less



U.S. House of Representatives

• United States
• Legislative Offices
• 700 & Above Employee

• Congressional Intern

  • Jan 2020 - May 2020

  Congressional Intern for Brenda Lawrence (MI-14)• Drafted Dear Colleague letters and floor speeches• Attended briefings for legislative staff• Assisted with Women's Issues portfolio

• Congressional Intern

  • Sep 2019 - Dec 2019

  Congressional Intern for Alma Adams Ph-D (NC-12)• Drafted constituent letters and policy memos on multiple different types of policy• Attended briefings for legislative staff • Organized constituent mail via Fireside, as well as all physical mail



American University

• United States
• Higher Education
• 700 & Above Employee

• Research Assistant

  • Jan 2019 - May 2019

  • Conducted research on veteran’s disability policy • Proofed and edited literature written by Dr. Gade • Produced qualitative and quantitative research for academic articles related to veteran's disability policy and policy reform • Conducted research on veteran’s disability policy • Proofed and edited literature written by Dr. Gade • Produced qualitative and quantitative research for academic articles related to veteran's disability policy and policy reform