Lindsey Cundiff

Associate Director of Patient Engagement at EveryLife Foundation for Rare Diseases
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Location
San Francisco Bay Area

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Alex Cox

Lindsey is a great boss and studio manager.She is fair and treats her employees well.

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Credentials

  • PPALS Certification
    Professional Patient Advocates in Life Sciences (PPALS)
    May, 2019
    - Sep, 2024
  • Wordpress Fundamentals
    AcademyX
    Jan, 2019
    - Sep, 2024

Experience

    • United States
    • Public Policy Offices
    • 1 - 100 Employee
    • Associate Director of Patient Engagement
      • Aug 2016 - Present

      The Associate Director of Patient Engagement is responsible for supporting the development and implementation of patient engagement initiatives developed in support of EveryLife Foundation’s policy priorities and organizational objectives. This position works closely with the EveryLife Foundation team as well as members of the rare disease patient community, coalition partner organizations, and industry professionals.• Oversees strategic engagement with patient community and relevant coalition partners;• Works with Chief of Policy and Advocacy to identity priority engagement areas and target areas for program growth in alignment with Foundation goals;• Represents Foundation through in-person and virtual conference engagement and community outreach, to include public speaking, poster presentations, and coordination of displays and conference booths;• Co-founded and Oversees the Young Adult Rare Representatives (YARR) program;• Liaises with Patient Programs Managers to ensure consistency, strategic program development, and support of patient engagement programs and continued engagement;• Works with Chief of Policy and Advocacy to develop, implement, and provide supportive management to a summer intern program and Patient Engagement fellowship position;• Manages patient engagement program budgets;• Directs the development of patient education resources including toolkits and webinars. Develops new and leverages existing content;• Helps to facilitate internal training on current patient-centered issues within the community;• Works with marketing to create and deliver patient-aimed communication materials;• Supports the Foundation’s mission, vision and values and represents;• Updates content on EveryLife’s patient engagement program webpages;• Works with communications to support management and responsiveness to inquiries through EveryLife patient-centered social media accounts;• Works to maintain patient contacts and organizations in the database; Show less

    • Office & Special Events Manager
      • 2016 - 2017

    • United States
    • Market Research
    • 1 - 100 Employee
    • Event/Admin Coordinator
      • Jul 2015 - Jul 2016

      * Proactively and efficiently managed all administrative tasks that facilitated day-to-day operations * Coordinated and managed all focus group events, including hosting staff and participants [up to 150 per day], ensuring all sessions ran smoothly and to schedule * Managed all staff operations, including staff scheduling, hiring, training, and terminations * Acted as the client liaison during focus group events, always communicating professionally and positively. Clients included Clorox, Plum Organics, Levi's, Netflix, Wholefoods, and Comcast * Created and implemented robust processes for sharing results with clients after focus group events * Managed communication and delivery of sensitive client information pertaining to focus group events * Oversaw all staff retention and engagement activities and events * Responsible for all post group reconciliation and database entry for all consumer participation * Coordinated and managed office supplies and food budget * Maintained all AV equipment, and facilitated on-site training for staff * Utilized multiple technologies to successfully manage operations including Trackvia, Google Drive, Excel, PowerPoint, Egnyte, MediaFire Show less

    • United States
    • Individual and Family Services
    • 1 - 100 Employee
    • Content Manager / Marketing Associate
      • Oct 2014 - May 2015

      * Managed a rotating team of 16 paid interns, tasked with pre-populating the iOS platform with over 3k user generated content submissions pre-launch * Responsible for new user acquisition within the app * Responsible for managing intake & resolution of all customer inquiries * Established communication process between customer service and technology; aggregated all app feedback & reviewed with technology team & stakeholders for product backlog * Responsible for on-boarding and overseeing all interns, developing new hire training material and weekly assignments, and ensuring all content goals are met * Assisted product & marketing teams in building strategic marketing roadmap * Responsible for curating, screening, editing, and uploading all user content submissions * Weekly metrics, Zendesk & team productivity reporting to executive management Show less

    • Freelance Rep/Events Manager
      • 2013 - 2015

      * On-site production manager for co-branded Amoeba/Converse live Rubber Tracks band performances & live in-store events at SF Converse store * Facilitated branding & marketing campaigns for all events * Acted as key liaison between band and store management, assisted sound engineers, oversaw ticket give-a-ways, and reported on in-store experience and crowd engagement * SF Newcastle marketing rep for all live events in Nov/Dec. 2013, successfully curating over 8 Newcastle branded music & food events Show less

    • Libraries
    • 1 - 100 Employee
    • Accounting Assistant
      • Sep 2013 - Dec 2014

      * Responsible for accounts receivable for over 4,000 online accounts * Worked with accounting team to maintain Quickbooks updates for collection notifications * Reconciled accounts payable weekly report to submit to CEO * Assisted with customer service for billing department * Responsible for accounts receivable for over 4,000 online accounts * Worked with accounting team to maintain Quickbooks updates for collection notifications * Reconciled accounts payable weekly report to submit to CEO * Assisted with customer service for billing department

    • United States
    • Entertainment Providers
    • Office Manager/Payables
      • 2013 - 2014

      • Responsible for Account Payables, generating payments to Venues in San Francisco and New York area. Familiar with a variety of software platforms, including TriNet, Xero and SVB. • Oversee Intern Payroll, scheduling and some additional training • Responsible for office supplies, inventory and stocking vending machine on a weekly basis. • Assist with Event Production • Responsible for Account Payables, generating payments to Venues in San Francisco and New York area. Familiar with a variety of software platforms, including TriNet, Xero and SVB. • Oversee Intern Payroll, scheduling and some additional training • Responsible for office supplies, inventory and stocking vending machine on a weekly basis. • Assist with Event Production

    • Executive Assistant
      • May 2007 - Apr 2013

      * Assembled marketing and live production teams for an independent PR company * Production manager for annual Halloween live event, liaison with talent booking, venue staff and promotional teams * Oversaw all ticket revenue handling, selling of merchandise and venue payout * Assisted in pre-production marketing, VIP guest lists and ticket giveaways * Assembled marketing and live production teams for an independent PR company * Production manager for annual Halloween live event, liaison with talent booking, venue staff and promotional teams * Oversaw all ticket revenue handling, selling of merchandise and venue payout * Assisted in pre-production marketing, VIP guest lists and ticket giveaways

    • Studio Manager
      • 2007 - 2013

      * Acted as the Studio Manager, Building Manager and Personal Assistant to the Owner/CEO * Established improved studio management process, oversaw all building maintenance and established operational practices * Responsible for all studio bookings and scheduling of all engineers and studio time * Facilitated all studio tours, negotiated rates & booking contracts, executed producer & licensing contracts, maintained client satisfaction from beginning to end * Streamlined bookkeeping system & established accounting organization in Quickbooks * Established partnership with Cornerstone for Rubber Tracks marketing campaign for the largest Converse store in the US (opened June 2013) * Facilitated Rubber Tracks studio sessions and managed in-studio branding * Established intern program, coordinated all staff meetings, oversaw all hiring, training and termination duties for intern program * Project Manager for 3 large building renovations, working with contractors and city permits * Responsible for PR sponsorships and relations with partners such as Zico, Ninkasi, Vitamin Water, Red Bull, Corona, Popchips, Rhapsody, The SF Grammy Association and AES. * Managed social media accounts, maintained website and monthly newsletters Show less

    • United States
    • Hospitals and Health Care
    • Monitored Housing Coordinator
      • 2002 - 2006

      * Designed and implemented transitional housing facility program for mental health clients * Managed all mental health floor staff at sister facility (99 bed capacity), oversaw hiring, staff meetings, training, annual reviews and proficiency of all personnel * Coordinated community outings, in-house activities, community peer support groups and a self-designed Yoga Group * Managed a 9-12 case load and created weekly reports for county supervisor * Designed and implemented transitional housing facility program for mental health clients * Managed all mental health floor staff at sister facility (99 bed capacity), oversaw hiring, staff meetings, training, annual reviews and proficiency of all personnel * Coordinated community outings, in-house activities, community peer support groups and a self-designed Yoga Group * Managed a 9-12 case load and created weekly reports for county supervisor

Education

  • University of California, Santa Cruz
    Bachelor's degree, Psychology
    2000 - 2004
  • Ex'pression College for Digital Arts
    BSA, sound arts
    2006 - 2008

Community

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