The Visual Snow Initiative is a nonprofit organization dedicated to Global Awareness, Education, Resources, Patient Advocacy, Treatment Development, and Research for Visual Snow Syndrome. Visual Snow Syndrome is a neurological disorder that impacts an individual’s vision, hearing, cognition, sensory processing, and quality of life. An estimated 2-3% of the world’s population are affected by symptoms of this debilitating condition. Our goal is to help those with Visual Snow Syndrome, so they can enjoy their lives without fear. The Visual Snow Initiative has successfully collaborated with leading researchers and scientists on a global scale, connecting experts with the most advanced technologies available in neuro-ophthalmology, neurology, ophthalmology, optometry, neuroscience, and neurobiology. By fostering awareness, education, collaboration, research, and treatment development, together, we are finding solutions. After organizing the first Visual Snow Conference, Sierra Domb founded the Visual Snow Initiative in 2018. Every day since then, our team has worked diligently to facilitate collaborations between physicians and academic institutions, develop solutions alongside researchers, make neuroscience more palatable for everyone regardless of age or health literacy, and help people affected by VSS worldwide. VSI developed the first Diagnostic Criteria for VSS, created the first Global Directory of VSS Physicians, established newfound awareness for VSS through multimedia content, funded critical research in 7 different countries that garnered clinical and scientific acceptance for VSS, and helped develop treatments where none existed. We strive to make the world a more accessible, educated, inclusive, and accommodating place for people of all ages affected by Visual Snow Syndrome.
