Overview

The Canadian Association for Porphyria was founded in 2014 by a small group of patients, caregivers and their friends to provide Canadians with porphyria-related information, understanding and support. Our mission is to: 1) Deliver evidence-based information and support to patients with porphyria, their families, health care providers and the general public across Canada; and 2) Achieve standards and evidence-based comprehensive care for all people with porphyria throughout their life spans. The current Canadian Association for Porphyria has built upon the legacy of two earlier organizations which served Canadians for more than two decades: the Canadian Porphyria Foundation/Canadian Association for Porphyria, Inc, (1988-2011) and the Alberta Porphyria Society (2011-2014). We are a registered Canadian charitable organization.