Moving glioblastoma from terminal to treatable. Powered by patients. OurBrainBank is the first non-profit created by, with, and for people living with glioblastoma (GBM). GBM is an aggressive and rare brain cancer. The 5-year survival rate is 5%. OBB founder Jessica Morris (1963-2021) was diagnosed with GBM in 2016. Frustrated by the paucity of options, she brought together fellow patients, neuro-oncologists, and tech experts to form OBB. Our pilot study used a free app to help people manage GBM better by tracking symptoms and activities. We're now developing a new data collection program using passive data collected by everyday smartphone usage. Patient-driven data is the new currency in medical research and apps the new empowerment tool for patients. It could potentially have the same impact as a blockbuster new drug. OurBrainBank advocates for new and better treatments and improved quality of life for people living with GBM and their care partners. A key tool is our GBM Bill of Rights.
