Long Covid Support is a registered charity (England & Wales) formed by a group of people with ongoing symptoms following SARS-CoV-2 infection. Our work spans 3 areas - advocacy, research involvement and peer support. We have been working to build awareness of the challenges and needs of people living with long-term effects from their initial Covid-19 infection, to advocate for those impacted and to embed lived experience into medical research and the diagnosis and treatment of Long Covid. We advocate for clear public health messaging, evidence-based health information and appropriate legislation to enable a sustainable return to work, education or caring responsibilities. We actively promote patient involvement in research, by facilitating the coproduction of research priorities, patient recruitment and dissemination of research findings. In addition, we have a tightly moderated private peer support group which is one of the largest in the world of its type. It's a safe place enabling anyone dealing with, or caring for someone with, Long Covid to share their stories and receive support wherever they are in the world and at whatever hour. Our programme of social and wellbeing activities includes online chats, chair yoga, opera breathing and a choir together with providing specialist resources to help with the debilitating range of symptoms that present with Long Covid.
