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Addison's Disease Self Help Group

Non-profit Organizations
  • Vicky Smith FRSA Executive Director at ADSHG | Bridger between people and tech | Builder of happy productive teams | #AdrenalInsufficiency | #RareDisease | #CharityManagement
    • Great Yarmouth, England, United Kingdom
    • Rising Star
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Overview

We support people affected by Addison's Disease, a rare endocrine disorder in which the adrenal glands do not produce enough steroid hormones. The condition affects almost 10,000 people in the United Kingdom & Republic of Ireland. The Addison’s Disease Self-Help Group (ADSHG) was founded in 1984 to support anyone affected by adrenal insufficiency. We work to provide practical support to people affected by Addison's Disease in a number of ways: - advice & information for patients & their families - emergency medical advice for patients information for healthcare professionals caring for people with Addison's - lobbying the NHS, HSE, policy-makers and influencers to consider the needs of people with Addison's - medical research We are a Charitable Incorporated Organisation (non-profit) registered with the Charity Commission. We are governed by a team of volunteer trustees and run day-to-day by our Operations Team. Registered charity No. 1179825