Experience

Genetic Alliance UK

• United Kingdom
• Non-profit Organizations
• 1 - 100 Employee

• Senior Policy and Public Affairs Officer

  • Sep 2022 - Present

  - providing the secretariat to the All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions- providing the secretariat to the Rare Disease UK Patient Empowerment Group and England Rare Disease Patient Advisory Group- Advocating for rare conditions in Parliament

• Policy and Public Affairs Officer

  • Aug 2021 - Sep 2022



Leeds Human Rights Journal

• United Kingdom
• Writing and Editing
• 1 - 100 Employee

• Digital Marketing Officer

  • Oct 2020 - Aug 2021

  I lead social media interaction for the undergraduate journal which involves: - Creating customised content for LinkedIn, Facebook, Instagram and Twitter to advertise events, Blog posts and engagement opportunities for undergraduates. - Assisting in the organisation and management of online webinars My achievements included: - Establishing our instagram account and building its follower base - Increasing attendance to our events with over 200 attendees - Boosting high quality submissions to our blog and academic journal resulting in more visits to our website Show less



EURORDIS-Rare Diseases Europe

• France
• Non-profit Organizations
• 1 - 100 Employee

• Young Citizen

  • Feb 2020 - Feb 2021

  I am a participant in the Young Citizen Conference as part of the Rare2030 Project. The role entails: o Contributing in building a set of recommendations to be presented to the European Parliament regarding rare disease policy for the next 10 years. o The responsibilities include: o Attending the European Conference on Rare Diseases 2020, o Working in team of 6 young citizens on a specific policy area to reflect and create recommendations,o Presenting these recommendations to a panel of experts. Show less

• Assistant

  • Jul 2020 - Jul 2020

  I worked with the Rare Barometer team on the codification of open questions on a survey regarding Covid-19

• Communications Assistant

  • Apr 2020 - May 2020

  I supported the Rare Barometer team in their distribution of a survey on the experiences of people living with a rare disease during the COVID-19 pandemic. Our work proved successful as the survey received the most responses since the initiative's creation in 2016. My responsibilities included: o Creating and posting content for Instagram, Facebook, Twitter and LinkedIn, o Contacting various organisations to distribute the survey and share live results.

• Communications Intern

  • Sep 2019 - Feb 2020

  I supported the Communications Team at Eurordis for 6 months during my unviersity placement:My activities included: • Initial research and presentation for new projects• Creation of social media content• Webpage creation for various departments of the organisation • Creative collaboration on the development of a new website design and preparing content for the new pages. • Preparing the digital newsletters; proof reading and ensuring consistency• Working with external suppliers on the graphic design of promotional resources Show less



LES PENSIERES

• France
• Hospitality
• 1 - 100 Employee

• Intern

  • Mar 2020 - Mar 2020

  I worked with the team to run the everday activities of the conference centre - cut short due to COVID19 I worked with the team to run the everday activities of the conference centre - cut short due to COVID19