Rachael Stevenson
Chief Executive Officer at Reverse Rett- Claim this Profile
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Bio
Sara Meredith
Racheal is someone you always want on your team. Her passion for change and treatment for Rett Syndrome is second to none. Her professionalism, her ability to hold her own and more in the intense medical community is testimony to her incredible drive and passion. From supporting parents to courting major companies for donations I truly believe that there is nothing Racheal cannot do if she sets her mind on it.
Wendy Horrobin The Norrie Disease Foundation UK
I met Rachel four years ago at a GDUK symposium- the first rare disease event I had attended. Rachel was the first person who spoke to me! Over the two days I learnt so much from Rachel about her journey setting up Reverse Rett. I was immensely touched and inspired by her openness and willingness to share and support others on their journeys of setting up a rare disease support group. I learnt so much from Rachel - her knowledge, strength, determination and expertise in the field of fundraising, navigating round research hurdles and galvanising community support has stayed with me to this day. An absolute force of nature and a gem in the rare disease world.
Sara Meredith
Racheal is someone you always want on your team. Her passion for change and treatment for Rett Syndrome is second to none. Her professionalism, her ability to hold her own and more in the intense medical community is testimony to her incredible drive and passion. From supporting parents to courting major companies for donations I truly believe that there is nothing Racheal cannot do if she sets her mind on it.
Wendy Horrobin The Norrie Disease Foundation UK
I met Rachel four years ago at a GDUK symposium- the first rare disease event I had attended. Rachel was the first person who spoke to me! Over the two days I learnt so much from Rachel about her journey setting up Reverse Rett. I was immensely touched and inspired by her openness and willingness to share and support others on their journeys of setting up a rare disease support group. I learnt so much from Rachel - her knowledge, strength, determination and expertise in the field of fundraising, navigating round research hurdles and galvanising community support has stayed with me to this day. An absolute force of nature and a gem in the rare disease world.
Sara Meredith
Racheal is someone you always want on your team. Her passion for change and treatment for Rett Syndrome is second to none. Her professionalism, her ability to hold her own and more in the intense medical community is testimony to her incredible drive and passion. From supporting parents to courting major companies for donations I truly believe that there is nothing Racheal cannot do if she sets her mind on it.
Wendy Horrobin The Norrie Disease Foundation UK
I met Rachel four years ago at a GDUK symposium- the first rare disease event I had attended. Rachel was the first person who spoke to me! Over the two days I learnt so much from Rachel about her journey setting up Reverse Rett. I was immensely touched and inspired by her openness and willingness to share and support others on their journeys of setting up a rare disease support group. I learnt so much from Rachel - her knowledge, strength, determination and expertise in the field of fundraising, navigating round research hurdles and galvanising community support has stayed with me to this day. An absolute force of nature and a gem in the rare disease world.
Sara Meredith
Racheal is someone you always want on your team. Her passion for change and treatment for Rett Syndrome is second to none. Her professionalism, her ability to hold her own and more in the intense medical community is testimony to her incredible drive and passion. From supporting parents to courting major companies for donations I truly believe that there is nothing Racheal cannot do if she sets her mind on it.
Wendy Horrobin The Norrie Disease Foundation UK
I met Rachel four years ago at a GDUK symposium- the first rare disease event I had attended. Rachel was the first person who spoke to me! Over the two days I learnt so much from Rachel about her journey setting up Reverse Rett. I was immensely touched and inspired by her openness and willingness to share and support others on their journeys of setting up a rare disease support group. I learnt so much from Rachel - her knowledge, strength, determination and expertise in the field of fundraising, navigating round research hurdles and galvanising community support has stayed with me to this day. An absolute force of nature and a gem in the rare disease world.
Experience
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Reverse Rett
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United Kingdom
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Non-profit Organizations
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1 - 100 Employee
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Chief Executive Officer
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Jul 2010 - Present
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Rett Syndrome Research Trust
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United States
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Research Services
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1 - 100 Employee
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Member Board of Trustees
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Apr 2013 - Present
I serve on the Board of Trustees for the Rett Syndrome Research Trust US. Please see here for more details: http://www.rsrt.org/about-rsrt/leadership/ I serve on the Board of Trustees for the Rett Syndrome Research Trust US. Please see here for more details: http://www.rsrt.org/about-rsrt/leadership/
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Washington PAVE
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United States
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Government Relations Services
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Assistant Director
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Aug 2000 - Jun 2003
Washington PAVE is a state-wide advocacy organisation for families of children and adults with disabilities. As Family Resource Co-ordinator for the STOMP Project, my role was to empower military families to advocate for their children re education and medical issues and to liaise with clinicians, school districts and other professionals as needed. I regularly traveled both nationally and internationally to provide workshops and presentations teaching local community professionals and families to better understand regulations re their rights and responsibilities.
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Education
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2005 - 2006
Bath Spa University
Master of Arts (MA), Creative Writing -
2004 - 2005
Ruskin College, Oxford
Cert. HE English and Creative Writing, 1st
Community
