Ryan Rodarmer
Director, The VEDS Movement at The Marfan Foundation- Claim this Profile
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Bio
Experience
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The Marfan Foundation
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United States
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Non-profit Organizations
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1 - 100 Employee
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Director, The VEDS Movement
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May 2023 - Present
-Serve as the lead staff liaison for the VEDS community and guide the future direction of the VEDS Division -Develop and execute support, education, and research initiatives for VEDS, while generating financial support for programs -Launch and enhance patient support and education programs, such as website development, support groups, webinars, conferences, camp support, and symposium support -Implement and improve medical education initiatives, including emergency awareness, genetic testing education, treatment guidelines, physician reference sheets, and care team guidance -Collaborate with members of the Professional Advisory Board and other medical professionals on educational projects -Manage the VEDS Collaborative, hosting meetings for stakeholders and the physician/science community -Identify research needs for the VEDS community and provide insight into potential projects -Collaborate with the Chief Philanthropy Officer to identify major donors and develop donor cultivation strategies -Oversee social media and communications for The VEDS Movement, working closely with the Director of Marketing and a Social Media Consultant -Work with the Volunteer Coordinator to design and manage volunteer programs for the VEDS Movement, and oversee the volunteers Show less
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The SADS Foundation
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United States
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Wellness and Fitness Services
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1 - 100 Employee
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Project Manager, Genetic Testing Task Force
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Jan 2023 - May 2023
-Developed and implemented strategies to increase awareness and understanding of cardiogenomic testing among physicians, patients, and other stakeholders -Coordinated and monitored the work of the task force, including setting goals and objectives, tracking progress, and ensuring that tasks were completed on time -Facilitated communication and collaboration among task force members and other stakeholders -Identified and addressed any obstacles or challenges that arose during the course of the project -Prepared regular reports on the progress of the project and presented them to the President/CEO and other stakeholders -Stayed current on new developments and research related to cardiogenomic testing and inherited cardiac arrhythmias Show less
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Self Employed
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United States
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700 & Above Employee
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Equity Trader
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Oct 2021 - Sep 2022
-Traded securities based on technical analysis of price movement across 3 accounts (day trades, swing trades, and long-term investments) -Combined fundamental and technical analysis to make trading decisions -Performed market research, analyzed charts and industry trends, created watch lists, followed stock trends, and assessed risk to maximize profit -Simultaneously utilized a minimum of 5 online trading tools for charting, technical analysis, watch list management, and market scans based on each tool's strengths and weaknesses Show less
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Spectrum Health
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United States
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Hospitals and Health Care
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700 & Above Employee
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Genetic Counselor
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Oct 2005 - Oct 2021
-Expertly provided comprehensive genetic counseling services both in-person and virtually across cardiology, oncology, and pediatrics specialties, with a focus on cardiovascular genetics as lead cardiac counselor for 16 years -Contributed to the establishment of an HCM Center of Excellence -Proven success in clinic coordination with a 4-year tenure overseeing the Fetal Alcohol Spectrum Disorder Clinic, resulting in a significant reduction of wait times by over 16 months and a 65% increase in the number of referred patients seen through streamlined referral processes -Acted as a patient advocate to secure necessary surveillance and testing, and collaborated with multidisciplinary teams to facilitate care coordination and prepare for medical emergencies related to genetic conditions by assisting patients in identifying and connecting with appropriate providers -Remained current with variant curation tools, including ExAC, SIFT, and PolyPhen-2, and utilized them to aid in result interpretation and management recommendations while adhering to ACMG/AMP standards and guidelines -Educated healthcare professionals, medical students, and genetic counseling students on the evaluation, diagnosis, treatment, surveillance, genetic testing, and psychosocial implications of genetic conditions -Designed and maintained Progeny databases for 4 specialty clinics, and effectively utilized advanced document software applications and remote collaboration tools Show less
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R3Design, LLC (Owner)
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Cedar Springs, Michigan, United States
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Website Developer
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May 2009 - Jan 2019
-Demonstrated extensive experience in website design, maintenance and graphic design, having successfully completed projects for over 20 clients, including 2 NSGC state chapters, a national political consulting firm, 2 political party county chapters, 5 local political candidates, an award-winning and best-selling author, and over 10 small business owners -Managed all aspects of client projects, including marketing, communication, project management, hiring of contract workers, and invoicing, displaying exceptional organizational skills and attention to detail Show less
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Wayne State University
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United States
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Higher Education
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700 & Above Employee
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Graduate Student Assistant
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Aug 2003 - Aug 2005
-Designed and maintained the Genetic Counseling Graduate Program website, requiring knowledge of HTML, CSS, Javascript, SQL, and content management systems -Developed online self-assessment tool for year-one Medical Genetics Education -Data entry using MS Excel and other applications, MS Access database design and maintenance -Designed and maintained the Genetic Counseling Graduate Program website, requiring knowledge of HTML, CSS, Javascript, SQL, and content management systems -Developed online self-assessment tool for year-one Medical Genetics Education -Data entry using MS Excel and other applications, MS Access database design and maintenance
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Spectrum Health
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United States
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Hospitals and Health Care
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700 & Above Employee
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Data Entry Technician
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Jan 2002 - Jul 2003
-Daily data entry of patient demographics and triple-screen results for trisomy 21, open neural tube defects, and trisomy 18 risk evaluation, followed by result interpretation and notification of referring provider -Creation and maintenance of cancer, pediatric, and fetal alcohol syndrome Progeny databases -General word processing, and data entry using Excel and Access databases -Daily data entry of patient demographics and triple-screen results for trisomy 21, open neural tube defects, and trisomy 18 risk evaluation, followed by result interpretation and notification of referring provider -Creation and maintenance of cancer, pediatric, and fetal alcohol syndrome Progeny databases -General word processing, and data entry using Excel and Access databases
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Education
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Wayne State University
Master of Science - MS, Genetic Counseling/Counselor -
Grand Valley State University
Bachelor's degree, Biology/Chemistry