Experience

Spinal Muscular Atrophy UK

• United Kingdom
• Individual and Family Services
• 1 - 100 Employee

• Communications & Support Coordinator

  • Jan 2019 - Present

  -Providing up to one day a week of information and support phone and email services to individuals and families affected by SMA. Ensuring that it's delivered in the best and most appropriate way for them, thus enabling them to address their health, social care and other life choices. Also working with Health, Education and Social Care Professionals (HESCPs) to ensure they have access to information and support that assists them in their work with people affected by SMA.-Provision of the multisensory toypack service to families with a baby newly diagnosed with SMA. This includes ordering / researching a selection of suitable toys, couriering of the pack with related information, and sensitive liaison between the family and the Support Services Team.-Working with the Support Services Manager and other staff to organise, write, and content manage the SMA UK website so that it is easily accessible, up-to-date and well-presented. This also includes developing a large, new sub-section of the website called 'Living With SMA' which provides detailed information about all aspects of living with the condition.-Working with the Management Team to design and produce key communications, such as the charity's Annual Report & Financial Statements, and brochures and leaflets.-With the support of the Support Services Manager / Fundraising Team, collate, plan ahead, write and post the daily social media communications (7 days a week), as well as the charity's monthly E-newsletter to keep the SMA Community up-to-date on everything from support to research and treatment news.-Taking a lead role in collating statistical and other database reports (using Raiser's Edge software) related to Support Services activity; also providing day-to-day admin support for the rest of the Support Services Team, including SMA UK event bookings, and managing admin of fund or grant schemes. Show less

• Communications & Administration Coordinator

  • Oct 2016 - Present

  •Post updates, write copy for, and organise the charity's website so that it’s easily accessible, visually interesting and well presented•Coordinate, write, and post the daily social media communications (Facebook, Twitter, Instagram) to ensure that updates are timely and efficient (this includes providing graphics/images). Also writing and editing content for monthly E-newsletter•Designing and implementing ideas to produce communications such as leaflets, and our biannual newsletter•Providing, and researching appropriate stock for, a multisensory toypack service for families with a baby diagnosed with SMA or SMARD•Taking a lead role in administration for the organisation, including 2018 GDPR legislation changes, with specific responsibility for: database reports, the integrity of the Raiser’s Edge database system, admin for event bookings and for fund/grant schemes. This also includes analysing and putting together statistical reports for our Annual Report and Big Lottery Funding reports•Working as part of the Information Production Team to help with producing information sheets about Spinal Muscular Atrophy (SMA); this includes the ability to write copy for sensitive topics, such as bereavement Show less

• Support Services Administrator and Website Coordinator

  • Oct 2015 - Oct 2016

• Support Services Assistant

  • Jan 2014 - Oct 2015