Experience

International Prader-Willi Syndrome Organisation (IPWSO)

• United Kingdom
• Non-profit Organization Management
• 1 - 100 Employee

• Vice President

  • Nov 2019 - Present

  - Regular participant in international directorial duties enabling cross border collaborations and evolving partnering;- Director fundraising sub-committee with strategic input into budgets, forecasts and planning, resulting in successfully achieving and surpassing targets;- Ongoing strategic involvement in relocating and re-registering of IPWSO; and- Direct contact with regional support groups in Asia, thereby assisting these groups in activities to strengthen their structure and reach. Show less

• Director

  • 2016 - Nov 2019



Prader-Willi Syndrome Australia

• Australia
• Non-profit Organizations
• 1 - 100 Employee

• President

  • 2014 - Present

  - Responsible for coordinating the amalgamation of the Australian State PWS associations into PWS Australia (PWSA); - Involved in current research with the Murdoch Children’s Research Institute and the ongoing process to include PWS on State and National Newborn Bloodspot Screening programs; - Secured international and national Memorandums of Understanding between PWSA, Foundation Prader-Willi Research (US) and Prader-Willi Research Foundation Australia enabling cross border cooperation in cutting edge genetic research; - Steered the PWS advisory group for National Disability Insurance Scheme consultations, driving relationship development with head office; - Chaired sub-committee that successfully staged numerous Asia Pacific conferences and international speaker tours of Australia; - Presented numerous papers to, and appeared before State and National Government hearings and advisory boards to champion the rights of individuals with a disability; and - Worked towards the establishment of the first national PWS register and a project to determine current and projected PWS health economics. Show less



Prader-Willi Better Living Foundation

• Founding Director and CEO

  • Jul 2013 - Present

  - Instrumental in founding and elevating disability organisation to emerging sector leader status; and - Partnered with the University of Melbourne School of Nursing in researching Australia’s PWS community needs resulting in a strategic publication. - Instrumental in founding and elevating disability organisation to emerging sector leader status; and - Partnered with the University of Melbourne School of Nursing in researching Australia’s PWS community needs resulting in a strategic publication.



Global Genes

• United States
• Non-profit Organizations
• 1 - 100 Employee

• Council Member

  • Jul 2019 - Present



Self Employed

• Human Resources Services
• 200 - 300 Employee

• Owner

  • 1978 - Present

  - Managed the building, converting or renovating of multiple retail, office and residential properties; - Purchased, expanded and sold numerous small retail businesses while retaining the freeholds; - Owned and operated a small business providing maintenance and minor building service to clients; - Licensed Real Estate Agent, having operated in commercial property management leasing, sales and property development with a special interest in supermarket and shopping centre leasing and brokerage; and - Established and directed numerous proprietary companies and family trusts. Show less



St Paul's College

• School Officer

  • 1998 - Jul 2019

  - Educator at St Paul’s College in Kew and Balwyn, a school for children with complex needs; and - Multi skilled role, assisting teachers and specialist staff (physio, occupational, speech, music and art therapists) in the day to day management of student activities. - Educator at St Paul’s College in Kew and Balwyn, a school for children with complex needs; and - Multi skilled role, assisting teachers and specialist staff (physio, occupational, speech, music and art therapists) in the day to day management of student activities.



Prader-Willi Syndrome Association of Victoria

• Australia
• Non-profit Organization Management
• 1 - 100 Employee

• Director

  • 1996 - Jul 2019

  - 10 years as President, steering the organisation into the 21st century, including introducing new technologies, practices and procedures; and - Oversight in organising and running dozens of family and industry education forums. - 10 years as President, steering the organisation into the 21st century, including introducing new technologies, practices and procedures; and - Oversight in organising and running dozens of family and industry education forums.