Experience

The Cure & Action for Tay-Sachs (CATS) Foundation

• Co-Founder and Chief Executive

  • Jun 2011 - Present

  London, United Kingdom Set-up The Cure & Action for Tay-Sachs (CATS) Foundation in June 2011 with my wife after our daughter was diagnosed with the rare and terminal illness Tay-Sachs in March 2011. As a charity, our focus is on providing support to families, funding the research and raising awareness of Tay-Sachs. My role involves running the charity on a day to day basis and my tasks include fundraising, accounting, marketing and research. I have become an effective fundraiser and have secured both… Show more Set-up The Cure & Action for Tay-Sachs (CATS) Foundation in June 2011 with my wife after our daughter was diagnosed with the rare and terminal illness Tay-Sachs in March 2011. As a charity, our focus is on providing support to families, funding the research and raising awareness of Tay-Sachs. My role involves running the charity on a day to day basis and my tasks include fundraising, accounting, marketing and research. I have become an effective fundraiser and have secured both grants from private and public sectors for the charity. In addition, I have held many events for the public to attend which have raised significant amounts. I have also created a brand for the charity which is now recognisable in the rare disease charity area. I have ensured that we are the number one charity for individuals affected by Tay-Sachs and we are now known to the NHS as a reliable source of information for families. Key projects which I have implemented are the first European Patient Registry for Tay-Sachs and Sandhoff Disease; new diagnosis packs which have been distributed to all NHS centres diagnosing the diseases; ground breaking app for smart phones which promotes and helps someone provide care to an individual with a terminal condition; and I have raised over £750,000 for the charity. Show less



Pulse Infoframe Inc.

• Canada
• Hospitals and Health Care
• 1 - 100 Employee

• Head Of Business Development & Patient Advocacy Specialist

  • May 2021 - Present

  London, England, United Kingdom Pulse Infoframe provides a full solution for registries, natural history studies, and a range of other observational and regulatory grade studies. We design, launch, and implement global registries, with embedded and dynamic consent models, data standardization to OMOP (required for global studies), and data compliance. We have relationships with providers for patient access, and our model ensures that insights, evidence, and publication results are disseminated across the ecosystem. My role as… Show more Pulse Infoframe provides a full solution for registries, natural history studies, and a range of other observational and regulatory grade studies. We design, launch, and implement global registries, with embedded and dynamic consent models, data standardization to OMOP (required for global studies), and data compliance. We have relationships with providers for patient access, and our model ensures that insights, evidence, and publication results are disseminated across the ecosystem. My role as Head of Business Development & Patient Advocacy Specialist is to drive forward our work across multiple sectors with a focus on Pharma, biotech and patient advocacy groups. Show less



European Tay-Sachs & Sandhoff Charity Consortium (ETSCC)

• United Kingdom
• Non-profit Organizations

• Chairman

  • Mar 2012 - Present

  London, United Kingdom I am the Chairman and founder of the European Tay-Sachs Charity Consortium (ETSCC). The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs. Members are all recognised charities in their country of origin. The three aims of the ETSCC are to raise awareness of Tay-Sachs and its associated diseases, support the research for a potential treatment and provide a united European voice. The members of the ETSCC meet once a year to discuss the… Show more I am the Chairman and founder of the European Tay-Sachs Charity Consortium (ETSCC). The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs. Members are all recognised charities in their country of origin. The three aims of the ETSCC are to raise awareness of Tay-Sachs and its associated diseases, support the research for a potential treatment and provide a united European voice. The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and the consortiums strategy. I manage the consortium and ensure that all information and knowledge of each charity is shared so that a potential treatment for the diseases can be found. More information can be found at http://etscc.org/ Show less



Cognitant Group Limited

• United Kingdom
• Wellness and Fitness Services
• 1 - 100 Employee

• Business Development Consultant - Rare Disease

  • Jul 2021 - May 2023

  London, England, United Kingdom Cognitant is an award-winning digital health company that brings pharma, PAGs and clinicians together to solve the big challenges for patients with technology. From mapping the patient journey and co-creation to designing and producing interactive digital solutions – we bring clinical, technical, creative and regulatory expertise to projects involving patients. I have joined the team to help launch our services into the rare disease market, with a focus of working with industry and… Show more Cognitant is an award-winning digital health company that brings pharma, PAGs and clinicians together to solve the big challenges for patients with technology. From mapping the patient journey and co-creation to designing and producing interactive digital solutions – we bring clinical, technical, creative and regulatory expertise to projects involving patients. I have joined the team to help launch our services into the rare disease market, with a focus of working with industry and patient groups to help them build more effective messaging about a disease and its clinical trials. Show less



Aparito

• United Kingdom
• Hospitals and Health Care
• 1 - 100 Employee

• Head Of Business Development

  • Apr 2020 - May 2021

  London, England, United Kingdom As Head of Business Development at Aparito I have a wide ranging role that has evolved in my time at the company. With a remit to build a team, I have recruited for and manage the Sales, Business Development and Marketing functions at Aparito. Reporting directly to the CEO and as part of the senior management team, I am involved in strategic decisions to develop new sale and business development initiatives for our remote patient monitoring technology. I regularly represent Aparito… Show more As Head of Business Development at Aparito I have a wide ranging role that has evolved in my time at the company. With a remit to build a team, I have recruited for and manage the Sales, Business Development and Marketing functions at Aparito. Reporting directly to the CEO and as part of the senior management team, I am involved in strategic decisions to develop new sale and business development initiatives for our remote patient monitoring technology. I regularly represent Aparito giving talks at conferences and webinars to highlight the benefits that our solution can bring to both patients and pharmaceutical companies. With my extensive background in patient advocacy, I am uniquely positioned to drive forward the work we do at Aparito so that we can reduce the burden on patients taking part in clinical trials by providing guidance on clinical trial design, recruitment, patient reported outcomes (PROs) and endpoints.

• Business Development Manager

  • Jan 2020 - Apr 2020

  London, United Kingdom Aparito is an innovative digital health technology company that has built a platform that reduces the burden of collecting patient data for both patients and physicians alike. Using the Atom5 system, data is collected via a mobile application and wearable devices. Trials can be conducted any time, anywhere in the world, broadening the scope of potential research. The platform and reporting system ensures data is consistent, continuous and cost-effective giving researchers a more rounded… Show more Aparito is an innovative digital health technology company that has built a platform that reduces the burden of collecting patient data for both patients and physicians alike. Using the Atom5 system, data is collected via a mobile application and wearable devices. Trials can be conducted any time, anywhere in the world, broadening the scope of potential research. The platform and reporting system ensures data is consistent, continuous and cost-effective giving researchers a more rounded view of patient symptoms and wellbeing.



mtn-i

• United Kingdom
• Broadcast Media Production and Distribution
• 1 - 100 Employee

• Business Development Manager

  • Aug 2017 - Jan 2020

  London, United Kingdom As the Business Development Manager at mtn-i my role focuses on driving the growth of the business through new sales and the maintenance and growth of existing client accounts. By documenting client feedback I am able to work on product development concepts by collaborating in tandem with the CEO, CTO and editorial team with the focus to develop new system functionality, products and features. I am also responsible for planning and overseeing new marketing initiatives at mtn-i. This is… Show more As the Business Development Manager at mtn-i my role focuses on driving the growth of the business through new sales and the maintenance and growth of existing client accounts. By documenting client feedback I am able to work on product development concepts by collaborating in tandem with the CEO, CTO and editorial team with the focus to develop new system functionality, products and features. I am also responsible for planning and overseeing new marketing initiatives at mtn-i. This is achieved through the preparation of marketing materials, information booklets/PDF documents, presentations and sales displays for events. Show less



Nystagmus Network

• United Kingdom
• Non-profit Organization Management
• 1 - 100 Employee

• Executive Information and Development Manager

  • Feb 2016 - Aug 2017

  London, United Kingdom I joined the Nystagmus Network as the Executive Information and Development Manager with a remit to drive the charity forward. The Nystagmus Network is the leading charity which supports people affected by the eye condition nystagmus. I have a varied role which includes managing the day to day running of the charity, establishing new projects which can have a positive impact on the nystagmus community and raising awareness of the condition. Since joining I have led a complete… Show more I joined the Nystagmus Network as the Executive Information and Development Manager with a remit to drive the charity forward. The Nystagmus Network is the leading charity which supports people affected by the eye condition nystagmus. I have a varied role which includes managing the day to day running of the charity, establishing new projects which can have a positive impact on the nystagmus community and raising awareness of the condition. Since joining I have led a complete re-brand of the charity, which has involved a new logo, new website and new publications. I led these projects and used my web skills to create the website and my expertise on Adobe Creative Cloud to produce a new range of support literature. I have also driven the charity forward in adopting online strategies which has resulted in huge cost savings. Examples are the bi-monthly online newsletter replacing a quarterly printed version, a larger social media presence and implementing a volunteer network based on a peer-to-peer support network. Show less



Dresdner Kleinwort

• Investment Banking

• Associate

  • Feb 2007 - Jul 2009

  As a member of the eCommerce team, we are responsible for the development, deployment and operation of the complete suite of issuer and investor facing electronic products at Dresdner Kleinwort. • Managed relationships with the internal and external clients using the eCommerce suite of products. • Targeted new users for the online platforms offered by the firm and coordinated the on-boarding process and any training required. • Attended client meetings to promote the firms… Show more As a member of the eCommerce team, we are responsible for the development, deployment and operation of the complete suite of issuer and investor facing electronic products at Dresdner Kleinwort. • Managed relationships with the internal and external clients using the eCommerce suite of products. • Targeted new users for the online platforms offered by the firm and coordinated the on-boarding process and any training required. • Attended client meetings to promote the firms eCommerce systems. • Liaising with the end users (external and internal) to determine which future developments would enhance the platforms efficiency. • Conducting ongoing comprehensive analysis of competitor’s offerings. • Implementation of new risk and regulatory requirements for the relevant financial products offered on the firm’s platforms. • Production of detailed user guides for each platform to maximize user efficiency and knowledge. • Marketing of the firm’s eCommerce capabilities internally and externally, including production of adverts for publication in financial media (e.g. Euroweek and IFR). • Liaising with Management at the onset of all new initiatives and advising them on the related costs, necessary specifications and estimated time to delivery, and ongoing liaison with management to keep them abreast of any new developments. • Involved in the sale of the proprietary eLoancoordinator platform to Misys (a global application software and services provider) in September 2007. Projected to provide the firm a multi million revenue stream. • Awards received for the above-mentioned platforms: Number 1 “Fixed Income Electronic Platform” by Euromoney (eBookbuilding); Number 1 “Best use Of Business to Business eCommerce” for SPICE platform. • Selected for the Corporate Athlete program in 2007, this programme focuses on the development of management skills and was designed for high performing associates.

• Analyst

  • Feb 2006 - Feb 2007

  A front office role in the eOrigination team: • A multi faced role with both origination and eCommerce based initiatives undertaken. • Producing EMTN (Euro Medium Term Note) and ECP (European Commercial Paper) origination presentations highlighting the firms capabilities in these product areas. • Carried out client specific research detailing trading figures and market analysis for the-above mentioned markets. • Initial development, design and launch of the SPICE online platform… Show more A front office role in the eOrigination team: • A multi faced role with both origination and eCommerce based initiatives undertaken. • Producing EMTN (Euro Medium Term Note) and ECP (European Commercial Paper) origination presentations highlighting the firms capabilities in these product areas. • Carried out client specific research detailing trading figures and market analysis for the-above mentioned markets. • Initial development, design and launch of the SPICE online platform for the MTN market.

• Marketing Assistant

  • Oct 2004 - Feb 2006

  My first role in the investment banking industry as the Marketing Assistant to a global team. • Assisted and supported the global marketing team in a range of tasks. • Detailed the current and expected spend in the monthly marketing budget for each project and designed and implemented new accounts system. • Produced product specific brochures (for external and internal clients). • Responsible for the corporate gifts which involved liaising with external agencies to provide a… Show more My first role in the investment banking industry as the Marketing Assistant to a global team. • Assisted and supported the global marketing team in a range of tasks. • Detailed the current and expected spend in the monthly marketing budget for each project and designed and implemented new accounts system. • Produced product specific brochures (for external and internal clients). • Responsible for the corporate gifts which involved liaising with external agencies to provide a range of items that best represented the firm. • Designed and implemented an online gift ordering system on the company intranet. • Member of the project team which constructed the global pitch and marketing materials web site.