Chief Executive Officer

• Dec 2018 - Present

Fight Bladder Cancer is a UK-based bladder cancer charity founded and governed by families affected by bladder cancer.We support everyone affected by bladder cancer, raise awareness, support medical research, and campaign to improve policy. Our aim is to achieve better outcomes and quality of life for all those affected by bladder cancer. Fight Bladder Cancer is a UK-based bladder cancer charity founded and governed by families affected by bladder cancer.We support everyone affected by bladder cancer, raise awareness, support medical research, and campaign to improve policy. Our aim is to achieve better outcomes and quality of life for all those affected by bladder cancer.

President

• Jun 2021 - Present

Our coalition brings together 11 patient organisations from 4 continents, uniting the vision and goals of bladder cancer patient organisations across the world.

Vice President

• Jan 2019 - Jun 2021

World-wide there is estimated to be more than 430,000 people who are newly diagnosed with bladder cancer each year. Yet, until 2019, there was not one single organisation to speak as the global voice for families affected by bladder cancer.

Patient Office Board Member

• Mar 2022 - Present

The European Association of Urology Patient Information Office provides reliable information and increases awareness of urologic cancers and diseases, and more – unbiased: without borders. The European Association of Urology Patient Information Office provides reliable information and increases awareness of urologic cancers and diseases, and more – unbiased: without borders.

Director

• Jul 2019 - Present

36 Station Road, Chinnor OX39 4QH, England. Breakfast, brunch, lunch or tea are all available, surrounded by shelves of books to browse through. Plus there are special events held regularly, including singing, pottery and story- time sessions. And, of course, the knowledge that you are supporting such a worthwhile charity. 36 Station Road, Chinnor OX39 4QH, England. Breakfast, brunch, lunch or tea are all available, surrounded by shelves of books to browse through. Plus there are special events held regularly, including singing, pottery and story- time sessions. And, of course, the knowledge that you are supporting such a worthwhile charity.

Associate Researcher (Vrijwillig Medewerker)

• Oct 2014 - Mar 2019

Investigated and published papers on: * Global patterns of diabetic retinopathy screening and treatment * The need for international consensus on prediabetes * Strategies to improve the quality of life of cancer survivors * Improving public trust in Big Data for health Investigated and published papers on: * Global patterns of diabetic retinopathy screening and treatment * The need for international consensus on prediabetes * Strategies to improve the quality of life of cancer survivors * Improving public trust in Big Data for health

Board Member

• Nov 2016 - Dec 2018

Pancreatic Cancer Europe is a multi-stakeholder platform bringing together experts to improve pancreatic cancer cancer care* Chaired the National Work Stream of volunteers to disseminate materials and raise awareness* Reviewed the organisation's annual budget and presented the report to members* Collaborated with health professionals to advocate for improved patient outcomes Pancreatic Cancer Europe is a multi-stakeholder platform bringing together experts to improve pancreatic cancer cancer care* Chaired the National Work Stream of volunteers to disseminate materials and raise awareness* Reviewed the organisation's annual budget and presented the report to members* Collaborated with health professionals to advocate for improved patient outcomes

Executive Director

• Aug 2016 - Dec 2018

The European Cancer Patient Coalition is Europe’s largest cancer patient federation.In my role as managing director of the organisation, I was responsible for the day-to-day operations of the organisation.• Worked with the 7 board members to develop a 4-year strategy and annual action plan • Increased annual revenue from €606,952 to €1,047,203 over 2 years• Recruit, manage and motivate a team of staff, interns, contractors, and volunteers• Develop the long-term strategy for the organisation in collaboration with Board and Members• Create, budget, and implement effective annual action plans• Establish successful working groups to involve Members in various projects • Represented the organisation at 22 international events and in 13 government meetings

Epidemiology and Public Health Manager

• Sep 2013 - Nov 2016

The International Diabetes Federation is the voice of people with diabetes worldwide.I was responsible for managing the Epidemiology and Public Health teams at the International Diabetes Federation. • Recruited and supervised a team of programmers, statisticians, and consultants• Delivered a diverse series of evidence-based public policy reports• Managed projects in health economics, access to medicine, and public health• Won contracts with private industry partners and responded to their needs• Presented public policy recommendations at international congresses• Demonstrated responsible management of the epidemiology budget• Developed strategic plans in conjunction with the Senior Leadership Team

Health Outcomes Manager

• Jul 2010 - Aug 2013

UCB Pharma is a global company finding solutions for people with severe diseases.At UCB Pharma I worked as a Health Outcomes Manager in Global Market Access and Pricing.• Worked in multidisciplinary teams to deliver reports and scientific papers • Set and exceeded team objectives while maintaining a positive work environment • Provided health economic assessments to support pricing and reimbursement • Managed the analysis of PharMetrics and other Patient-Centric data• Produced reports and articles on disease burden and treatment cost• Collaborated with health professionals and patient groups in order to identify unmet needs• Generated targeted and systematic literature reviews• Engaged a task force to develop global strategies in global market access

Research Consultant

• Apr 2009 - Jun 2010

Businesss & Decision is an international consultancy service supporting the life sciences industry.• Fulfilled the needs of internal and external clients• Developed cost-of-illness and economic assessments for potential future interventions• Presented work internally to colleagues and externally at international congresses• Assessed comorbidities and resource utilisation within patient-centric databases• Conducted multivariate statistical analysis on outcomes from clinical trials• Supplied data for a scientific advice package to aid in the assessment of novel indications• Contributed to the content of global value dossiers• Published a manuscript on the predictors of direct health care costs in Parkinson’s disease

Senior Post-Doctoral Fellow

• Mar 2006 - Nov 2008

The University of Washington Medical Center is a leading academic research hub.• Collaborated with clinicians to investigate strategies to improve cancer outcomes• Operated within a hospital setting to study autoimmune disease and T cell maturation• Compiled genetic databases, conducted meta-analyses and drafted compliance protocols• Published a manuscript on novel factors influencing T cell memory response The University of Washington Medical Center is a leading academic research hub.• Collaborated with clinicians to investigate strategies to improve cancer outcomes• Operated within a hospital setting to study autoimmune disease and T cell maturation• Compiled genetic databases, conducted meta-analyses and drafted compliance protocols• Published a manuscript on novel factors influencing T cell memory response

Research and IT Consultant

• Mar 1999 - Nov 2006