The Steve Waugh Foundation is ‘somewhere to turn’ for children and young adults with Rare Diseases. Often without diagnosis, without treatment, and therefore, without reason to hope, the Rare Disease patient is the orphan of the health system. We strive to change this. We take a holistic approach in supporting children and young adults (0-25yrs) with the rarest diseases. We work to improve their quality of life by providing support and opportunities to connect with others through: Individual Grants: funding for children and young adults (0-25yrs) such as specialised equipment and treatment therapies Respite Camps: specially designed retreats to support families caring for a child or young person with a Rare Disease (SNUG) Raising Awareness: playing a lead role in sponsoring a coordinated approach to the promotion of World Rare Disease Day in Australia since 2009
